John Massie

Going home: Clinician perspectives on decision-making in paediatric home mechanical ventilation

Juliette Jeffreys, Mayukh Rahman, Danya Vears, John Massie

Journal article  |  2023  |  JOURNAL OF PAEDIATRICS AND CHILD HEALTH

AIM: Despite a recent increase in the use of ventilators in the home setting for children with chronic respiratory failure, there ..

Overcoming the burden of cystic fibrosis

John Massie

Journal article  |  2023  |  MEDICAL JOURNAL OF AUSTRALIA

Non-pulmonary CFTR-related symptom improvement with ivacaftor in p.Phe508del/p.Arg117His (7T) cystic fibrosis

Stephanie L Kuek, R John H Massie

Journal article  |  2023  |  RESPIROLOGY CASE REPORTS

Diagnosis and management of CRMS/CFSPID and cystic fibrosis (CF) with mild phenotypes remains challenging, and this extends to exp..

Newborn screening for CF - The good, the bad and the ugly.

Juerg Barben, John Massie

Journal article  |  2023  |  J Cyst Fibros

Deciding with children

John Massie

Journal article  |  2022  |  ARCHIVES OF DISEASE IN CHILDHOOD

Factors in childhood associated with lung function decline to adolescence in cystic fibrosis.

Nelufa Begum, Catherine A Byrnes, Joyce Cheney, Peter J Cooper, Emmanuelle Fantino, Nicholas Gailer, Keith Grimwood, Diana GutierrezCardenas, John Massie, Colin F Robertson, Peter D Sly, Harm Awm Tiddens, Claire E Wainwright, Robert S Ware

Journal article  |  2022  |  J Cyst Fibros

BACKGROUND: Despite improvements in general health and life expectancy in people with cystic fibrosis (CF), lung function decline ..

The Australian Reproductive Genetic Carrier Screening Project (Mackenzie's Mission): Design and Implementation

Alison D Archibald, Belinda J McClaren, Jade Caruana, Erin Tutty, Emily A King, Jane L Halliday, Stephanie Best, Anaita Kanga-Parabia, Bruce H Bennetts, Corrina C Cliffe, Evanthia O Madelli, Gladys Ho, Jan Liebelt, Janet C Long, Jeffrey Braithwaite, Jillian Kennedy, John Massie, Jon D Emery, Julie McGaughran, Justine E Marum, et al.

Journal article  |  2022  |  JOURNAL OF PERSONALIZED MEDICINE

Reproductive genetic carrier screening (RGCS) provides people with information about their chance of having children with autosoma..

Reproductive genetic carrier screening for cystic fibrosis, fragile X syndrome and spinal muscular atrophy: patterns of community and healthcare provider participation in a Victorian screening program

Ruth Leibowitz, Sharon Lewis, Jon Emery, John Massie, Melanie Smith, Martin Delatycki, Alison Archibald

Journal article  |  2022  |  AUSTRALIAN JOURNAL OF PRIMARY HEALTH

BACKGROUND: The Royal Australian and New Zealand College of Obstetricians and Gynaecologists and The Royal Australian College of G..

183 Chest computed tomography assessment to monitor cystic fibrosis structural lung disease progression in bronchiectasis during late childhood and adolescence

Y Chen, H Tiddens, C Byrnes, J Carlin, J Cheney, P Cooper, K Grimwood, M Kemner-van de Corput, J Massie, C Robertson, P Sly, S Vidmar, C Wainwright

Journal article  |  2022  |  Journal of Cystic Fibrosis

Jumping in puddles and other goods of childhood

John Massie

Journal article  |  2022  |  ARCHIVES OF DISEASE IN CHILDHOOD