Rony Duncan

"They don't really get heard": A qualitative study of sibling involvement across two forms of family-based treatment for adolescent anorexia nervosa

Tanja Van Langenberg, Rony E Duncan, J Sabura Allen, Susan M Sawyer, Daniel Le Grange, Elizabeth K Hughes

Journal article  |  2018  |  EATING DISORDERS

Little is known about the involvement of siblings in family-based treatment (FBT) for anorexia nervosa (AN). To explore the experi..

"Both Sides of the Wheelchair": The Views of Individuals with, and Parents of Individuals with Friedreich Ataxia Regarding Pre-symptomatic Testing of Minors

Georgia C Lowe, Louise A Corben, Rony E Duncan, Grace Yoon, Martin B Delatycki

Journal article  |  2015  |  JOURNAL OF GENETIC COUNSELING

Friedreich ataxia (FRDA) is an autosomal recessive neurodegenerative disorder characterized by variable age of onset, with no trea..

Development of a fragile X syndrome (FXS) knowledge scale: towards a modified multidimensional measure of informed choice for FXS population carrier screening

Alice G Ames, Alice Jaques, Obioha C Ukoumunne, Alison D Archibald, Rony E Duncan, Jon Emery, Sylvia A Metcalfe

Journal article  |  2015  |  HEALTH EXPECTATIONS

BACKGROUND: Genetic carrier screening is increasingly possible for many conditions, but it is important to ensure decisions are in..

Measuring informed choice in population-based reproductive genetic screening: a systematic review

Alice Grace Ames, Sylvia Ann Metcalfe, Alison Dalton Archibald, Rony Emily Duncan, Jon Emery

Journal article  |  2015  |  EUROPEAN JOURNAL OF HUMAN GENETICS

Genetic screening and health-care guidelines recommend that programmes should facilitate informed choice. It is therefore importan..

Balancing Parental Involvement With Adolescent Friendly Health Care in Teenagers With Diabetes: Are We Getting It Right?

Rony E Duncan, Maureen Jekel, Michele A O'Connell, Lena A Sanci, Susan M Sawyer

Journal article  |  2014  |  JOURNAL OF ADOLESCENT HEALTH

PURPOSE: Current guidance about adolescent-friendly health care emphasizes the benefits of seeing young people alone for confident..

Adolescents, Risk Behaviour and Confidentiality: When Would Australian Psychologists Breach Confidentiality to Disclose Information to Parents?

Rony E Duncan, Ben J Williams, Ann Knowles

Journal article  |  2013  |  AUSTRALIAN PSYCHOLOGIST

The protection of confidentiality in psychological practice is vital. However, confidentiality is not absolute and psychologists a..

"Should I Send a Condolence Card?" Promoting Emotional Safety in Qualitative Health Research Through Reflexivity and Ethical Mindfulness

Evelyn C Bowtell, Susan M Sawyer, Rosalie A Aroni, Julie B Green, Rony E Duncan

Journal article  |  2013  |  QUALITATIVE INQUIRY

We present a case study involving the unexpected deaths of two young people whose parents were taking part in a qualitative study ..

"There's a Whole Different Way of Working with Adolescents": Interviews with Australian Genetic Counselors About their Experiences with Adolescent Clients

Cheryl Tse, Margaret Sahhar, Jane Wallace, Rony E Duncan

Journal article  |  2013  |  JOURNAL OF GENETIC COUNSELING

Adolescence is a developmental period marked by unique physical, psychological and social changes. Guidelines about working with a..

"It was the missing piece": adolescent experiences of predictive genetic testing for adult-onset conditions

Cara Mand, Lynn Gillam, Rony E Duncan, Martin B Delatycki

Journal article  |  2013  |  GENETICS IN MEDICINE

PURPOSE: Predictive genetic testing for adult-onset conditions, such as Huntington disease, is available to at-risk adults. Guidel..

Tricky teens: are they really tricky or do genetic health professionals simply require more training in adolescent health?

Rony E Duncan, Mary-Anne Young

Journal article  |  2013  |  PERSONALIZED MEDICINE

Providing health services to young people poses specific challenges as a consequence of their unique developmental stage. In the f..