Understanding the Australian public's expectations of personalised genomics
Grant number: DP150100597 | Funding period: 2015 - 2018
This multi-disciplinary project aims to be the first to explore the Australian public's awareness of new developments in genetic science that allow healthy individuals to access their own genetic makeup. Called 'personal genomics', this broad group of genetic tests can be used for a variety of purposes that include ancestry, paternity, sporting ability and health. These tests are developing at a rapid rate yet little is known about why, how and where they are used by the public. This project will employ a mixed methods approach to examine how the public might engage with this new technology. The research aims to help define educational strategies and supports and thereby to inform national p..View full description
Related publications (7)
The expectations and realities of nutrigenomic testing in australia: A qualitative study
Erin Tutty, Chriselle Hickerton, Bronwyn Terrill, Belinda McClaren, Rigan Tytherleigh, Elaine Stackpoole, Jaqueline Savard, Ainsley Newson, Anna Middleton, Amy Nisselle, Marie Cusack, Melissa Adamski, Clara Gaff, Sylvia Metcalfe
BACKGROUND: Consumer genomic testing for nutrition and wellness, (nutritional genomics), is becoming increasingly popular. Concurr..
From Expectations to Experiences: Consumer Autonomy and Choice in Personal Genomic Testing.
Jacqueline Savard, Chriselle Hickerton, Sylvia A Metcalfe, Clara Gaff, Anna Middleton, Ainsley J Newson
Background: Personal genomic testing (PGT) offers individuals genetic information about relationships, wellness, sporting ability,..
Personal genomic testing for nutrition and wellness in Australia: A content analysis of online information
Erin Tutty, Chriselle Hickerton, Melissa M Adamski, Sylvia A Metcalfe
AIM: Personal genomic testing for nutrition and wellness (PGT-NG) offers a new service delivery model to nutritionists and dietiti..
Australians' perspectives on support around use of personal genomic testing: Findings from the Genioz study
Sylvia A Metcalfe, Chriselle Hickerton, Jacqueline Savard, Elaine Stackpoole, Rigan Tytherleigh, Erin Tutty, Bronwyn Terrill, Erin Turbitt, Kathleen Gray, Anna Middleton, Brenda Wilson, Ainsley J Newson, Clara Gaff
Personal genomic testing using direct-to-consumer and consumer-directed models, with or without involvement of healthcare provider..
Australians' views and experience of personal genomic testing: survey findings from the Genioz study
Jacqueline Savard, Chriselle Hickerton, Rigan Tytherleigh, Bronwyn Terrill, Erin Turbitt, Ainsley J Newson, Brenda Wilson, Kathleen Gray, Clara Gaff, Anna Middleton, Elaine Stackpoole, Sylvia A Metcalfe
Personal genomic tests (PGTs) for multiple purposes are marketed to ostensibly healthy people in Australia. These tests are genera..
Australians' views on personal genomic testing: focus group findings from the Genioz study
Sylvia A Metcalfe, Chriselle Hickerton, Jacqueline Savard, Bronwyn Terrill, Erin Turbitt, Clara Gaff, Kathleen Gray, Anna Middleton, Brenda Wilson, Ainsley J Newson
Personal genomic testing provides healthy individuals with access to information about their genetic makeup for purposes including..
Consumer Health Informatics Aspects of Direct-to-Consumer Personal Genomic Testing
Kathleen Gray, Remya Stephen, Bronwyn Terrill, Brenda Wilson, Anna Middleton, Rigan Tytherleigh, Erin Turbitt, Clara Gaff, Jacqueline Savard, Chriselle Hickerton, Ainsley Newson, Sylvia Metcalfe
This paper uses consumer health informatics as a framework to explore whether and how direct-to-consumer personal genomic testing ..