GIVING AN ADULT LIFE AFTER FONTAN SURGERY TO THOSE WITH THE MOST SEVERE CONGENITAL HEART CONDITIONS
Grant number: 1076849 | Funding period: 2014 - 2019
The Fontan operation is the last of a series of operations performed for babies born with a single pumping heart chamber (ventricle). In the largest research of its kind, the Australia and New Zealand Fontan Registry partners with Heartkids, the parents’ association and the National Heart Foundation are intending to improve their life as they step into adulthood. We believe that our new standardised model of care will decrease their risk of experiencing adverse events such as stroke and reoperation.
Related publications (5)
Hospital costs and cost implications of co-morbid conditions for patients with single ventricle in the period through to Fontan completion
Li Huang, Kim M Dalziel, Chris Schilling, David S Celermajer, John J McNeil, David Winlaw, Tom Gentles, Dorothy J Radford, Michael Cheung, Andrew Bullock, Gavin R Wheaton, Robert N Justo, Lisa A Selbie, Victoria Forsdick, Karin Du Plessis, Yves d'Udekem
BACKGROUND: Patients undergoing palliative surgeries for single-ventricle conditions are affected by multiple comorbidities or non..
Hospital Inpatient Costs for Single Ventricle Patients Surviving the Fontan Procedure
Li Huang, Chris Schilling, Kim M Dalziel, Siyu Xie, David S Celermajer, John J McNeil, David Winlaw, Tim S Hornung, Dorothy J Radford, Leeanne E Grigg, Andrew Bullock, Gavin R Wheaton, Robert N Justo, Jayne Blake, Rachel Bishop, Karin Du Plessis, Yves d'Udekem
We estimated the inpatient resource use for a Fontan patient from birth to adulthood and explored factors that might induce cost d..
The Fontan epidemic: Population projections from the Australia and New Zealand Fontan Registry
Chris Schilling, Kim Dalziel, Russell Nunn, Karin Du Plessis, William Y Shi, David Celermajer, David Winlawf, Robert G Weintraub, Leanne E Grigg, Dorothy J Radford, Andrew Bullock, Thomas L Gentles, Gavin R Wheaton, Tim Hornung, Robert N Justo, Yves d'Udekem
BACKGROUND: The number and age demographic of the future Fontan population is unknown. METHODS: Population projections were calcul..
Use of ACE inhibitors in Fontan: Rational or irrational?
Thomas G Wilson, Ajay J Iyengar, David S Winlaw, Robert G Weintraub, Gavin R Wheaton, Thomas L Gentles, Julian Ayer, Leeanne E Grigg, Robert N Justo, Dorothy J Radford, Andrew Bullock, David S Celermajer, Kim Dalziel, Chris Schilling, Yves d'Udekem
BACKGROUND: Despite a lack of evidence supporting the use of angiotensin-converting enzyme (ACE) inhibitors in patients with a Fon..