QUANTIFYING THE BURDEN OF SYSTEMIC SCLEROSIS IN AUSTRALIA: FROM DATA LINKAGE TO PATIENT REPORTED OUTCOMES

Grant number: 1113954 | Funding period: 2016 - 2017

Completed

Abstract

Systemic sclerosis (SSc) is a rare autoimmune disease with the potential to cause significant physical, financial and psychosocial burden on patients, their family members and wider community. The true ‘burden’ of SSc in Australia is unknown. My study aims to quantify this burden of disease and use our results to advocate for appropriate allocation of resources with the ultimate goal of improving patient outcomes and reducing the financial and human costs of this chronic rare disease.

Related publications (5)

University of Melbourne Researchers