'A short time but a lovely little short time': Bereaved parents' experiences of having a child with spinal muscular atrophy type 1
Emily J Higgs, Belinda J McClaren, Margaret AR Sahhar, Monique M Ryan, Robin Forbes
Journal of Paediatrics and Child Health | WILEY | Published : 2016
Ms Higgs completed this study in partial fulfilment of the requirements of the Master of Genetic Counselling, University of Melbourne. The authors would like to acknowledge Dr Jan Hodgson, Research Coordinator of the Master of Genetic Counselling, for her support and guidance. This work was supported by the Victorian Government's Operational Infrastructure Support Program.