'A short time but a lovely little short time': Bereaved parents' experiences of having a child with spinal muscular atrophy type 1

Emily J Higgs; Belinda J McClaren; Margaret AR Sahhar; Monique M Ryan; Robin Forbes

Journal article

'A short time but a lovely little short time': Bereaved parents' experiences of having a child with spinal muscular atrophy type 1

Emily J Higgs, Belinda J McClaren, Margaret AR Sahhar, Monique M Ryan, Robin Forbes

Journal of Paediatrics and Child Health | WILEY | Published : 2016

DOI: 10.1111/jpc.12993

University of Melbourne Researchers

Monique Ryan Author Paediatrics Royal Children's Hospital

Margaret Sahhar Author Paediatrics Royal Children's Hospital

Belinda McClaren Author Paediatrics Royal Children's Hospital

Grants

Funding Acknowledgements

Ms Higgs completed this study in partial fulfilment of the requirements of the Master of Genetic Counselling, University of Melbourne. The authors would like to acknowledge Dr Jan Hodgson, Research Coordinator of the Master of Genetic Counselling, for her support and guidance. This work was supported by the Victorian Government's Operational Infrastructure Support Program.