Journal article

The involvement of patient organisations in rare disease research: a mixed methods study in Australia

Deirdre Pinto, Dominique Martin, Richard Chenhall

Orphanet Journal of Rare Diseases | BIOMED CENTRAL LTD | Published : 2016

DOI: 10.1186/s13023-016-0382-6

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20Web of Science
17Scopus

Keywords

Research
Medicine, Research & Experimental
Translational Research
Genetics & Heredity
Health Research
Clinical-Research
Reducing Waste
Australia
Scientific-Research
Surveys and Questionnaires
Humans
Health Policy
National Plan
Patient and Public Involvement
Patient Organisations
Research & Experimental Medicine
Consumer Involvement
Increasing Value
Advocacy Organizations
Biomedical-Research
Science & Technology
Life Sciences & Biomedicine
Patient Advocacy
Rare Diseases
Research Policy