Journal article

Culturally and linguistically diverse populations in medical research: perceptions and experiences of older Italians, their families, ethics administrators and researchers

Robyn Woodward-Kron, Jo-anne Hughson, Anna Parker, Agnese Bresin, John Hajek, Ute Knoch, Tuong Dien Phan, David Story



BACKGROUND: Low-participation of culturally and linguistically diverse (CALD) patients in medical research remains a problem in migrant and refugee destination countries such as Australia. The aims of this study were to explore i) CALD persons' perceptions and experiences of the medical system and medical research, in this case, older Italian Australians; and ii) the views of research professionals on CALD patient participation in medical research. DESIGN AND METHODS: A qualitative study was conducted in Melbourne, Australia, in 2015 utilising in-depth interviews and focus groups with four stakeholder groups: older Italian Australians (n=21); adult children of older Italian Australians (n=10..

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Funding Acknowledgements

the. authors would thank Melbourne Networked Society Institute (MNSI), University of Melbourne, for a 2014 project grant; the Italo-Australian participants and their families; the research ethics administrators, trial coordinators, and the anaesthesia researchers who participated in the study; from MNSI, Dr Chamil Jayasundara, and Mr Ken Clarke for resource development; and Dr Sean Fabri, Professor Rinaldo Bellow, and Ms Maria Phieler for appearing on the resource; and Mrs Mardi Story and Mrs Britt Wilson for pilot testing the interviews.