Journal article

Psychological Distress and Posttraumatic Stress Symptoms in Adolescents and Young Adults with Cancer and Their Parents

Maria C McCarthy, Robyn McNeil, Sarah Drew, David Dunt, Silja Kosola, Lisa Orme, Susan M Sawyer

JOURNAL OF ADOLESCENT AND YOUNG ADULT ONCOLOGY | MARY ANN LIEBERT, INC | Published : 2016

Abstract

PURPOSE: To investigate the prevalence and predictors of psychological distress in adolescent and young adult (AYA) cancer patients and their parent caregivers. METHODS: In a cross-sectional study design, AYA participants (n = 196) and parent caregivers (n = 204) were recruited from 18 sites across Australia. AYAs were aged 15-25 years at cancer onset and within 6-24 months of diagnosis. AYAs and parents completed a survey that includes validated measures of psychological distress (anxiety, depression, and posttraumatic stress symptoms [PTSS]). Additional measures included validated and study-specific questionnaires related to sociodemographic and medical information, social supports, cancer..

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Grants

Awarded by Cancer Australia in association


Funding Acknowledgements

We wish to acknowledge the generosity of the Australian young people and their families who participated in this study. This project was funded from 2011 to 2013 by a grant (APP1010977) from the Cancer Australia in association with the beyondblue and CanTeen through the Priority-driven Collaborative Cancer Research Scheme to support research that reduces the impact of cancer on the community and improves outcomes for people affected by cancer. Additional funding has been gratefully received from the ONTrac at Peter Mac Victorian Adolescent and Young Adult Cancer Service, the Victorian Department of Health (Cancer Strategy and Planning, Department of Health), the Victorian Governments Operational Infrastructure Support Program, the Royal Children's Hospital Foundation, and Redkite. Dr. McCarthy is funded via a Murdoch Childrens Research Institute Career Development Award.