Journal article
Beyond a Disease Registry: An Integrated Virtual Environment for Adrenal Cancer Research
RO Sinnott, F Beuschlein, J Effendy, G Eisenhofer, S Gloeckner, A Stell
Journal of Grid Computing | SPRINGER | Published : 2016
Abstract
Many biomedical research collaborations are focused on the establishment of web-based databases that capture phenotypic and in some cases genotypic information, targeted to specific diseases – so called disease registries. Such resources are often used for clinical matchmaking and allow information on patients and patient disorders to be shared by clinicians with wider biomedical research communities outside of a given hospital setting, and potentially with patients and/or patient advisory groups. Whilst addressing aspects of clinical collaborations through making targeted biomedical data accessible - such registries are really only a starting point for what can be achieved to support resear..
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Awarded by Horizon 2020 Framework Programme
Funding Acknowledgements
ENS@T-Cancer - The work leading to these results has received funding from the European Union Seventh Framework Programme (FP7/2007-2013) under grant agreement No. 259735. This work has also received funding from the European Union's Horizon 2020 research and innovation programme under grant agreement No. 633983. The University of Melbourne Master students, Purathani Gunanayagam and Chao Lin undertook the work on the ENS@T-CANCER mobile applications and acknowledged for their efforts here. We would also like to thank the ENS@T community for their continued support and involvement in ENS@T-CANCER, and their adoption and usage of the VRE.