Journal article
Towards an ICF core set for ADHD: a worldwide expert survey on ability and disability
E de Schipper, S Mahdi, D Coghill, PJ de Vries, SSF Gau, M Granlund, M Holtmann, S Karande, F Levy, O Almodayfer, L Rohde, R Tannock, S Bölte
European Child and Adolescent Psychiatry | SPRINGER | Published : 2015
Abstract
This is the second in a series of four empirical studies designed to develop International Classification of Functioning, Disability and Health (ICF and Children and Youth version, ICF-CY) core sets for attention deficit hyperactivity disorder (ADHD). The objective of this stage was to gather the opinions from international experts on which ability and disability concepts were considered relevant to functioning in ADHD. An email-based survey was carried out amongst international experts in ADHD. Relevant functional ability and disability concepts were extracted from their responses and linked to the ICF/-CY categories by two independent researchers using a standardised linking procedure. 174..
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Funding Acknowledgements
The development of the ICF Core Sets for ADHD is a cooperative effort of the WHO, the ICF Research Branch, a partner of the WHO Collaboration Centre for the Family of International Classifications in Germany (at DIMDI), the European Network of Hyperkinetic Disorders (EUNETHYDIS), and the Center of Neurodevelopmental Disorders at the Karolinska Institutet (KIND) in Sweden. Guidance on this project is provided by a Steering Committee comprised key opinion leaders in the field of ADHD from all six WHO regions. This Steering Committee consists of the co-authors of this paper and Heidi Bernhardt, Judith Hollenweger, Michael Rosler, Melissa Selb, Susan Swedo and Bedirhan Ustun. The development of ICF Core Sets for ADHD is supported by the Swedish Research Council (grant nr. 523-2009-7054), and the Swedish Research Council in partnership with FAS (now renamed FORTE), FORMAS and VINNOVA (trans-disciplinary research programme on child and youth mental health, grant nr. 259-2012-24).