Book Chapter

Measuring the Quality of Life of Children and Adolescents

E DAVIS, D YOUNG, E WATERS, L GOLD

Reference Module in Biomedical Sciences | Elsevier | Published : 2016

Abstract

Measuring the quality of life (QOL) of children and adolescents is important for evaluating clinical trials and health systems and services. While there are now a range of psychometrically sound generic and condition-specific QOL instruments for children with a range of conditions, key challenges remain in terms of (a) understanding and interpreting discrepancies between child self-reports and parent-proxy reports and (b) demonstrating that a QOL instrument is sensitive to change. Further research is required to inform the development of preference-based QOL instruments, which are increasingly sought after, and the generation of evidence demonstrating that generic and condition-specific QOL ..

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