Journal article
The Ark: A customizable web-based data management tool for health and medical research
A Bickerstaffe, T Ranaweera, T Endersby, C Ellis, S Maddumarachchi, GE Gooden, P White, EK Moses, AW Hewitt, JL Hopper
Bioinformatics | OXFORD UNIV PRESS | Published : 2017
Abstract
The Ark is an open-source web-based tool that allows researchers to manage health and medical research data for humans and animals without specialized database skills or programming expertise. The system provides data management for core research information including demographic, phenotype, biospecimen and pedigree data, in addition to supporting typical investigator requirements such as tracking participant consent and correspondence, whilst also being able to generate custom data exports and reports. The Ark is 'study generic' by design and highly configurable via its web interface, allowing researchers to tailor the system to the specific data management requirements of their study.
Grants
Awarded by National Center for Research Resources
Funding Acknowledgements
This work was supported by the Australian Twin Registry, a national resource in part supported by a Centre of Research Excellence Grant [1079102 to J.L.H.] from the National Health and Medical Research Council. The project was also supported by the eResearch Tools Program from National eResearch Collaboration Tools and Resources (NeCTAR), and the Cancer Council of Western Australia's Capacity Building and Collaboration Grant.