A good resource for parents, but will clinicians use it?: Evaluation of a resource for paediatric end-of-life decision making

Abstract

Background: Communication with parents about end-of-life care and decisions is a difficult and sensitive process. The objective of the present study was to ascertain clinicians' views on the acceptability and usefulness of a handbook and web-based resource (Caring Decisions) that was designed as an aid for parents facing end-of-life decisions for their child. Methods: Qualitative interviews were conducted with a range of health professionals who provide care to children facing life-limiting conditions. Results: Data analysis confirmed the acceptability and usefulness of the resource. Two major themes were revealed: 1. Family empowerment, with sub-themes Giving words and clarity, Conversation..