Journal article
Unmet need for healthcare services in adolescents and young adults with cancer and their parent carers
SM Sawyer, R McNeil, M McCarthy, L Orme, K Thompson, S Drew, D Dunt
Supportive Care in Cancer | SPRINGER | Published : 2017
Abstract
Purpose: Cancer in adolescents in and young adults (AYA) has the potential to disrupt health, well-being and developmental trajectories. This study aimed to describe the healthcare support service needs of AYAs with cancer and parent carers and to explore the association of unmet need and emotional distress. Methods: As part of a national Australian survey of 15–25 year olds with cancer and a nominated parent carer, 196 AYAs reported total and unmet need for 10 clinical services and 204 parents reported on their child’s and their own healthcare service needs. Proportions of total and unmet need for specific clinical services are reported. The association of unmet service needs and distress (..
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Awarded by Cancer Australia
Funding Acknowledgements
We wish to acknowledge the generosity of the Australian young people and their families who participated in this study. This project was funded by a grant from Cancer Australia (APP1010977) in association with Beyond Blue and Canteen through the Priority-Driven Collaborative Cancer Research Scheme. Additional funding was gratefully received from Redkite, the Royal Children's Hospital Foundation, ONTrac Adolescent & Young Adult Cancer Service, Peter MacCallum and the Victorian Department of Health (Cancer Strategy and Planning branch). Dr. McCarthy is funded via a Murdoch Childrens Research Institute Career Development Award. The Murdoch Childrens Research Institute is supported by the Victorian Government's Operational Infrastructure Support Program.