From patients to partners: participant-centric initiatives in biomedical research
Jane Kaye, Liam Curren, Nick Anderson, Kelly Edwards, Stephanie M Fullerton, Nadja Kanellopoulou, David Lund, Daniel G MacArthur, Deborah Mascalzoni, James Shepherd, Patrick L Taylor, Sharon F Terry, Stefan F Winter
NATURE REVIEWS GENETICS | NATURE PUBLISHING GROUP | Published : 2012
Advances in computing technology and bioinformatics mean that medical research is increasingly characterized by large international consortia of researchers that are reliant on large data sets and biobanks. These trends raise a number of challenges for obtaining consent, protecting participant privacy concerns and maintaining public trust. Participant-centred initiatives (PCIs) use social media technologies to address these immediate concerns, but they also provide the basis for long-term interactive partnerships. Here, we give an overview of this rapidly moving field by providing an analysis of the different PCI approaches, as well as the benefits and challenges of implementing PCIs.
Awarded by NCRR NIH HHS
Awarded by PHS HHS
Awarded by Wellcome Trust
Awarded by NATIONAL CENTER FOR RESEARCH RESOURCES