Conference Proceedings

A Standard Set of Outcome Measures for the Comprehensive Appraisal of Cleft Care

Alexander C Allori, Thomas Kelley, John G Meara, Asteria Albert, Krishnamurthy Bonanthaya, Kathy Chapman, Michael Cunningham, John Daskalogiannakis, Henriette de Gier, Andrew A Heggie, Cristina Hernandez, Oksana Jackson, Yin Jones, Loshan Kangesu, Maarten J Koudstaal, Rajiv Kuchhal, Anette Lohmander, Ross E Long, Leanne Magee, Laura Monson Show all

The Cleft Palate-Craniofacial Journal | ALLIANCE COMMUNICATIONS GROUP DIVISION ALLEN PRESS | Published : 2017


Awarded by Plastic Surgical Foundation Pilot Research Grant


Funding Acknowledgements

We would like to thank the invaluable input provided by the patient and family members of our working group. We would also like to thank the many clinicians and academicians who have devoted their lives toward the care of children with CL/P and toward the better understanding of cleft outcomes. We especially acknowledge Jeffrey R. Marcus, MD, and Bill Shaw, BDS, PhD, and in addition, Amy Abernethy, MD, PhD; Cynthia H. Cassell, PhD; Patricia Chibbaro, MSN, C-PNP; JanetD. Cragan, MD, MPH; David Fitzsimons, BAppSc; Cindy Guernsey, BScN, RN; Anne Klassen, PhD; and Ann MabieDeruyter, CCC-A. This project was funded in part by the 2013 Plastic Surgical Foundation Pilot Research Grant 273938, with relevant presentations at the 69th Annual Meeting of the American Cleft Palate-Craniofacial Association (ACPA) in San Jose, California, the 12th International Congress in Orlando, Florida, and the 71st Annual Meeting of the ACPA in Indianapolis, Indiana. Additional funding was received from Boston Children's Hospital, Children's Hospital of Philadelphia, Texas Children's Hospital, and Great Ormond Street Hospital. We are most appreciative to these organizations for their gracious support of our work, without which it would not have come to fruition.