A pre-test and post-test study of the physical and psychological effects of out-of-home respite care on caregivers of children with life-threatening conditions

Abstract

Background: Respite services are recommended as an important support for caregivers of children with life-threatening conditions. However, the benefits of respite have not been convincingly demonstrated through quantitative research. Aim: To determine the impact of out-of home respite care on levels of fatigue, psychological adjustment, quality of life and relationship satisfaction among caregivers of children with life-threatening conditions. Design: A mixed-methods, pre-test and post-test study Setting/participants: A consecutive sample of 58 parental caregivers whose children were admitted to a childrens hospice for outof- home respite over an average of 4 days.Results: Caregivers had bel..