Journal article

Revised consensus statement on the preventive and symptomatic care of patients with leukodystrophies

Laura A Adang, Omar Sherbini, Laura Ball, Miriam Bloom, Anil Darbari, Hernan Amartino, Donna DiVito, Florian Eichler, Maria Escolar, Sarah H Evans, Ali Fatemi, Jamie Fraser, Leslie Hollowell, Nicole Jaffe, Christopher Joseph, Mary Karpinski, Stephanie Keller, Ryan Maddock, Edna Mancilla, Bruce McClary Show all

Molecular Genetics and Metabolism | ACADEMIC PRESS INC ELSEVIER SCIENCE | Published : 2017

Grants

Awarded by National Institutes of Health (NIH) National Center for Advancing Translational Sciences


Awarded by NIH


Awarded by National Institutes of Health, National Institute of Child Health and Human Development via Children's National Medical Center Child Health Research Career Development Award


Awarded by Sterol and Isoprenoid Consortium part of Rare Diseases Clinical Research Network, an initiative of the Office of Rare Diseases Research (ORDR), NCATS


Awarded by National Institutes of Health, National Institute of Neurologic Disorders and Stroke


Funding Acknowledgements

The GLIA consensus meeting was funded in part by a grant from the Departments of Neurology and Genetics at Children's National Medical Center and the members of the Leukodystrophy Alliance. Additional funding includes, LB: supported by the National Institutes of Health (NIH) National Center for Advancing Translational Sciences (Award Number UL1TR001876); GB: Research Scholar Junior 1 award from the Fonds de Recherche du Quebec en Sante (FRQS) (2012-2016) and the New Investigator Salary Award from the Canadian Institutes for Health Research (2017-2022); JLB: Supported by the PCMC Foundation, NIH DP2 MH100008, March of Dimes Foundation research grant, and the Vanishing White Matter Foundation; SHE: Supported by funding from the Hunter's Hope Foundation for Development of Clinical Practice Guidelines (CPGs); JLF: Supported by funding from the National Institutes of Health, National Institute of Child Health and Human Development via Children's National Medical Center Child Health Research Career Development Award (2K12HD001399-11) (salary and research support); EM: Endocrine Exploratory Research Fund, Division of Endocrinology and Diabetes, Children's Hospital of Philadelphia; WR: Funded in part by the Sterol and Isoprenoid Consortium (U54HD061939) which is part of Rare Diseases Clinical Research Network, an initiative of the Office of Rare Diseases Research (ORDR), NCATS, in collaboration with the Eunice Kennedy Shriver National Institute of Child Health and Human Development; KVH: Supported by grants from the Lucile Packard Foundation (salary support) and the Child Neurology Foundation (research and salary support); AV: Supported by grants from the National Institutes of Health, National Institute of Neurologic Disorders and Stroke (1K08NS060695) and the Myelin Disorders Bioregistry Project.