Usage patterns and data quality: A case study of a national type-1 diabetes study

Abstract

The Environmental Determinants of Islet Auto-immunity (ENDIA) project is Australia's largest study into the causes of Type-1 Diabetes (T1D). The ENDIA study is supported by a Cloud-based software platform including a clinical registry comprising extensive longitudinal information on families at risk of having a child that might go on to develop T1D. This registry includes both demographic and clinical information on families and children as well as the environmental factors that might influence the onset of T1D. A multitude of samples are obtained through the study and used to support a diverse portfolio of bioinformatics data analytics. The quality of the data in the registry is essential t..