Journal article
Influences on decision-making for young women undergoing bilateral prophylactic mastectomy
R Glassey, M O'Connor, A Ives, C Saunders, SJ Hardcastle
Patient Education and Counseling | ELSEVIER IRELAND LTD | Published : 2018
Abstract
Objective: The objective of this study was to explore the influences on decision-making of younger women (<35) undergoing or considering bilateral prophylactic mastectomy (BPM). Methods: Qualitative interviews guided by interpretative phenomenological analysis (IPA) were conducted with forty-six women who had a strong family history of breast cancer (BC) who had either undergone (n = 26) or were considering (n = 20) BPM. Participants were recruited from Australia and New Zealand (NZ) via hospitals, a genetics clinic, a research cohort, a registry and online. Results: Four themes underpinning the influences on decision-making were identified: fear and anxiety, children, personal experiences w..
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Funding Acknowledgements
[ "We wish to thank the women who participated in this study, Genetic Services of Western Australia and the two hospitals involved for their help in recruitment. We also thank The University of Western Australia who awarded a University Postgraduate Award to a PhD student for this research.", "This research was supported by Register4 through its members' participation in research and/or provision of samples and information.", "We wish to thank Heather Thorne, Eveline Niedermayr, the kConFab research nurses and staff, the staff of the Family Cancer Clinics, and the Clinical Follow Up Study (which received funding from the NHMRC, the National Breast Cancer Foundation, Cancer Australia, and the National Institute of Health (USA)) for their contributions to this resource, and the families who contribute to kConFab. kConFab is supported by a grant from the National Breast Cancer Foundation, and previously by the National Health and Medical Research Council (NHMRC), the Queensland Cancer Fund, the Cancer Councils of New South Wales, Victoria, Tasmania South Australia, and Western Australia." ]