Journal article
Quality of life outcomes in children with Hirschsprung disease
L Collins, B Collis, M Trajanovska, R Khanal, JM Hutson, WJ Teague, SK King
Journal of Pediatric Surgery | W B SAUNDERS CO-ELSEVIER INC | Published : 2017
Abstract
Background Morbidity following repair of Hirschsprung disease (HD) is common. However, quality of life (QoL) results focused on HD children are contradictory. We aimed to measure QoL outcomes in HD children using validated questionnaires. Methods Patients with HD, managed at a large tertiary pediatric institution between 2004 and 2013, were identified. Parents completed validated questionnaires. Results were compared with published healthy population controls. QoL outcomes were measured using Pediatric Quality of Life (PedsQL) and Fecal Incontinence and Constipation Quality of Life (FIC QOL). Functional outcomes were assessed using Baylor Continence Scale, Cleveland Clinic Constipation Scori..
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Funding Acknowledgements
Associate Professor Sebastian King is the grateful recipient of a Career Development Award (Murdoch Children's Research Institute) and Senior Lecturer Fellowship (Royal Australasian College of Surgeons). His position as an Academic Pediatric Surgeon is generously supported by The Royal Children's Hospital Foundation. Associate Professor Warwick Teague's position as an Academic Pediatric Surgeon and Director of Trauma Services is generously supported by The Royal Children's Hospital Foundation.