Journal article
Can I access my personal genome? The current legal position in the UK
J Kaye, N Kanellopoulou, N Hawkins, H Gowans, L Curren, K Melham
Medical Law Review | Oxford University Press | Published : 2013
Open access
Abstract
This paper discusses the nature of genomic information, and the moral arguments in support of an individual’s right to access it. It analyses the legal avenues an individual might take to access their sequence information. The authors describe the policy implications in this area and conclude that, for now, the law appears to strike an appropriate balance, but new policy will need to be developed to address this issue.
Grants
Funding Acknowledgements
J.K. Wellcome Trust Award 096599/2/11/Z; H.G. CDGG11a ESRC 07-08; K. M. is supported by the National Institute for Health Research (NIHR) Oxford Biomedical Research Centre.