Journal article
Building a data sharing model for global genomic research
P Kosseim, ES Dove, C Baggaley, EM Meslin, FH Cate, J Kaye, JR Harris, BM Knoppers
Genome Biology | BIOMED CENTRAL LTD | Published : 2014
Abstract
Data sharing models designed to facilitate global business provide insights for improving transborder genomic data sharing. We argue that a flexible, externally endorsed, multilateral arrangement, combined with an objective third-party assurance mechanism, can effectively balance privacy with the need to share genomic data globally.
Grants
Awarded by Genome Canada
Funding Acknowledgements
PK and CB contributed to this article in their own personal capacity; their views do not necessarily reflect the views of the Office of the Privacy Commissioner of Canada. ESD and BMK acknowledge and thank the funding support from the Public Population Project in Genomics and Society (P3G), the Canadian Institutes of Health Research - Institute of Genetics, Genome Canada, and Genome Quebec. EMM is supported by NIH grant #UL1RR025761-0; DHHS grant #90HI0054/01. The work of FHC in this area was supported by NIH grant RC1 CA146501-01. JK is funded under Wellcome Trust Award 096599/2/11/Z and the EU F7 project BIOSHARE.