Journal article

Using digital technologies to engage with medical research: views of myotonic dystrophy patients in Japan

Victoria Coathup, Harriet JA Teare, Jusaku Minari, Go Yoshizawa, Jane Kaye, Masanori P Takahashi, Kazuto Kato

BMC Medical Ethics | BMC | Published : 2016


BACKGROUND: As in other countries, the traditional doctor-patient relationship in the Japanese healthcare system has often been characterised as being of a paternalistic nature. However, in recent years there has been a gradual shift towards a more participatory-patient model in Japan. With advances in technology, the possibility to use digital technologies to improve patient interactions is growing and is in line with changing attitudes in the medical profession and society within Japan and elsewhere. The implementation of an online patient engagement platform is being considered by the Myotonic Dystrophy Registry of Japan. The aim of this exploratory study was to understand patients' views..

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University of Melbourne Researchers


Awarded by JSPS

Awarded by Grants-in-Aid for Scientific Research

Funding Acknowledgements

This research is partially supported by the research grants for Comprehensive Research on Persons with Disabilities from Japan Agency for Medical Research and Development (MPT) and Research on rare and intractable diseases from the Ministry of Health Labour and Welfare of Japan (MPT), the JSPS Grant-in-Aid for Challenging Exploratory Research (15 K15167, KK), Osaka University International Joint Research Promotion Program (KK), and the JSPS Grant-in-Aid for Young Scientists (B) (15K19149, JM).