Journal article
Has the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital era Donna Dickenson, Sandra Soo-Jin Lee, and Michael Morrison
D Chalmers, D Nicol, J Kaye, J Bell, AV Campbell, CWL Ho, K Kato, J Minari, CH Ho, C Mitchell, F Molnár-Gábor, M Otlowski, D Thiel, SM Fullerton, T Whitton
BMC Medical Ethics | BMC | Published : 2016
Open access
Abstract
Biobanks have been heralded as essential tools for translating biomedical research into practice, driving precision medicine to improve pathways for global healthcare treatment and services. Many nations have established specific governance systems to facilitate research and to address the complex ethical, legal and social challenges that they present, but this has not lead to uniformity across the world. Despite significant progress in responding to the ethical, legal and social implications of biobanking, operational, sustainability and funding challenges continue to emerge. No coherent strategy has yet been identified for addressing them. This has brought into question the overall viabili..
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Awarded by National Institute of Child Health and Human Development
Funding Acknowledgements
DC, DN, MO and TW are supported by Australian Research Council Discovery Grant DP110100694. JK is funded by the Wellcome Trust 096599/2/11/2. KK and JM are funded by Grants-in-Aid for Scientific Research on Innovative Areas from the Ministry of Education, Culture, Sports, Science and Technology (MEXT) of Japan (221S0002). DT is supported by a grant from the Eunice Kennedy Shriver National Institute for Child Health and Human Development (1R01HD067264) and a National Research Service Award Fellowship, Agency for Healthcare Research and Quality.