Journal article
Integrating Patient Concerns into Parkinson’s Disease Management
SY Lim, AH Tan, SH Fox, AH Evans, SC Low
Current Neurology and Neuroscience Reports | SPRINGER | Published : 2017
Abstract
Parkinson’s disease (PD) is a complex motor and non-motor disorder and management is often challenging. In this review, we explore emerging approaches to improve the care of patients, drawing from the literature regarding patient-centred care, patient and caregiver perspectives and priorities, gaps in knowledge among patients and caregivers and the need for accurate information, individual variability in disease manifestations, prognostication of disease course, new developments in health technologies and personalized medicine, specialty care, pharmacological and non-pharmacological management, financial burden, lifestyle and work-related issues, support groups and palliative care.
Grants
Awarded by National Institutes of Health
Funding Acknowledgements
We are grateful to all our patients and their caregivers who have taught us so much. We wish to acknowledge the insightful feedback received from Ms. Sara Lew Lai Heong (President, Malaysian PD Association and previously a caregiver for many years), Mr. Samuel Ng Hoong Fong (President, Perak Parkinson's Association, MJFF Fox Trial Finder Ambassador, and himself having PD since 2009), Ms. Cheryl Vanderschaaf (Volunteer, Malaysian PD Association and previously a caregiver), Mr. Chung Han Yang (Resource & Research Administrator, Parkinson's & Movement Disorders Service, University of Malaya, and previously a caregiver), and Dr. Narelle Warren PhD (Medical Sociologist with an interest in chronic illness). SY Lim and AH Tan received funding support from the Malaysian Ministry of Higher Education grant for High-Impact Research (HIR) UM.C/625/1/HIR/MOHE/CHAN/11/03.