Journal article

Perceived diagnostic delay and cancer-related distress: a cross-sectional study of patients with colorectal cancer

Anne Miles, Paula L McClements, Robert JC Steele, Claudia Redeker, Nick Sevdalis, Jane Wardle

PSYCHO-ONCOLOGY | WILEY | Published : 2017

Abstract

OBJECTIVE: This study aimed to examine the effect of perceived diagnostic delay on cancer-related distress and determine whether fear of cancer-recurrence and quality of life mediate this relationship. METHODS: Cross-sectional study in which 311 colorectal cancer (CRC) survivors in Scotland completed a survey, which included questions on cancer-related distress (IES-R), perceived diagnostic delay, quality of life (trial outcome index of the FACT-C: FACT-C TOI) and fear of cancer recurrence. Fifteen patients withheld consent to data matching with medical records, leaving a sample size of 296. Participants were an average of 69 years old (range 56 to 81) and between 3.5 and 12 years post-diagn..

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University of Melbourne Researchers

Grants

Funding Acknowledgements

We thank the participants of this study, patient GPs and staff at NHS National Services Scotland whose support made this study possible. A. Miles, R. J. C. Steele, N. Sevdalis and J. Wardle received a grant from the Bowel Disease Research Foundation to fund this project. N. Sevdalis' research was supported by the National Institute for Health Research (NIHR) Collaboration for Leadership in Applied Health Research and Care South London at King's College Hospital NHS Foundation Trust. Sevdalis is a member of King's Improvement Science, which is part of the NIHR CLAHRC South London and comprises a specialist team of improvement scientists and senior researchers based at King's College London. Its work is funded by King's Health Partners (Guy's and St Thomas' NHS Foundation Trust, King's College Hospital NHS Foundation Trust, King's College London and South London and Maudsley NHS Foundation Trust), Guy's and St Thomas' Charity, the Maudsley Charity and the Health Foundation. The views expressed are those of the authors and not necessarily those of the NHS, the NIHR or the Department of Health. J. Wardle is supported by Cancer Research UK. The study funder played no role in the study design, the collection, analysis and interpretation of data, the writing of the report or in the decision to submit the article for publication.