Journal article
An international clinical study of ability and disability in ADHD using the WHO-ICF framework
S Mahdi, N Ronzano, A Knüppel, JC Dias, A Albdah, L Chien-Ho, O Almodayfer, A Bluschke, S Karande, HL Huang, H Christiansen, M Granlund, PJ de Vries, D Coghill, R Tannock, L Rohde, S Bölte
European Child and Adolescent Psychiatry | SPRINGER | Published : 2018
Open access
Abstract
This is the fourth and final study designed to develop International Classification of Functioning, Disability and Health (ICF, and children and youth version, ICF-CY) core sets for attention-deficit hyperactivity disorder (ADHD). To investigate aspects of functioning and environment of individuals with ADHD as documented by the ICF-CY in clinical practice settings. An international cross-sectional multi-centre study was applied, involving nine units from eight countries: Denmark, Germany, India, Italy, Portugal, Saudi Arabia, Sweden and Taiwan. Clinicians and clinical researchers rated the functioning level of 112 children, adolescents and adults with ADHD using the extended ICF-CY checklis..
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Awarded by VINNOVA
Funding Acknowledgements
The development of ICF Core Sets for ADHD is a cooperative effort between the Center of Neurodevelopmental Disorders at the Karolinska Institutet (KIND) in Sweden, the ICF Research Branch, a cooperation partner within the WHO Collaboration Centre for the Family of International Classifications in Germany (at DIMDI), and the European Network of Hyperkinetic Disorders (EUNETHYDIS). The project also received practical support by the ADHD World Organization. Guidance on this project is provided by the Steering Committee comprised of key opinion leaders in the field of ADHD from all six WHO-regions (Omar Almodayfer, Heidi Bernhardt, David Coghill, Petrus de Vries, Mats Granlund, Judith Hollenweger, Martin Holtmann, Sunil Karande, Florence Levy, Luis Rohde, Michael Rosler, Melissa Selb, Susan Shur Fen-Gau, Susan Swedo, Rosemary Tannock, Bedirhan ustun). The development of ICF Core Sets for ADHD is supported by the Swedish Research Council in partnership with FAS (now renamed FORTE), FORMAS and VINNOVA (transdisciplinary research programs on child and youth mental health, Grant no. 259-2012-24). For this specific study, funding was also made by the National Cheng Kung University in Taiwan. This study acknowledges the support of clinical researchers, research assistants and clinicians who were involved in recruiting, rating and analyzing clinical cases. These include Sara Carucci and Roberta Romaniello (University of Cagliari), Min-Chia Weng (Department of Psychiatry, National Chen Kung University Hospital, Taiwan), Johanna Bengtsson, Christer Classon, John Hasslinger, Philip Ivers-Ohlsson, Micaela Meregalli, and Anna Pilfalk, (all Center of Neurodevelopmental Disorders at Karolinska Institutet (KIND), Stockholm, Sweden).