Concurrence between subject and proxy ratings of quality of life for people with and without intellectual disabilities

Abstract

The purpose of this investigation was to examine concurrence between subjects' self-reported quality of life (QOL) and assessments of their QOL made by proxies who were either a first degree relative, or were acting in a supportive role similar to that of a family member Two studies were conducted. The first study, using ComQol-A4, examined the degree of concurrence between nondisabled subjects' QOL and ratings made on their behalf by proxies who were either a parent or a sibling (N = 78 subject/proxy pairs). The second study utilised ComQol-ID4, and examined agreement between QOL ratings made by subjects with mild intellectual disability and proxies who were either parents or support worker..