Journal article
Common data elements for epilepsy mobile health systems
DM Goldenholz, R Moss, DA Jost, NE Crone, G Krauss, R Picard, C Caborni, JE Cavazos, J Hixson, T Loddenkemper, TD Salazar, L Lubbers, LC Harte-Hargrove, V Whittemore, J Duun-Henriksen, E Dolan, N Kasturia, M Oberemk, MJ Cook, M Lehmkuhle Show all
Epilepsia | WILEY | Published : 2018
DOI: 10.1111/epi.14066
Open access
Abstract
Objective: Common data elements (CDEs) are currently unavailable for mobile health (mHealth) in epilepsy devices and related applications. As a result, despite expansive growth of new digital services for people with epilepsy, information collected is often not interoperable or directly comparable. We aim to correct this problem through development of industry-wide standards for mHealth epilepsy data. Methods: Using a group of stakeholders from industry, academia, and patient advocacy organizations, we offer a consensus statement for the elements that may facilitate communication among different systems. Results: A consensus statement is presented for epilepsy mHealth CDEs. Significance: Alt..
View full abstract