Journal article
Research priority setting in childhood chronic disease: A systematic review
HL Odgers, A Tong, P Lopez-Vargas, A Davidson, A Jaffe, A McKenzie, R Pinkerton, M Wake, P Richmond, S Crowe, PHY Caldwell, S Hill, J Couper, S Haddad, B Kassai, JC Craig
Archives of Disease in Childhood | BMJ PUBLISHING GROUP | Published : 2018
Abstract
Objective To evaluate research priority setting approaches in childhood chronic diseases and to describe the priorities of stakeholders including patients, caregivers/families and health professionals. Design We conducted a systematic review of MEDLINE, Embase, PsycINFO and CINAHL from inception to 16 October 2016. Studies that elicited stakeholder priorities for paediatric chronic disease research were eligible for inclusion. Data on the prioritisation process were extracted using an appraisal checklist. Generated priorities were collated into common topic areas. Results We identified 83 studies (n=15 722). Twenty (24%) studies involved parents/caregivers and four (5%) children. The top thr..
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Awarded by National Health and Medical Research Council
Funding Acknowledgements
HLO received a scholarship from the Better Treatment for Kids Network funded by NSW Health. AT is supported by the National Health and Medical Research Council Fellowship (1106716). Professor Wake was supported by NHMRC Senior Research Fellowship and Cure Kids New Zealand. Research at the Murdoch Children's Research Institute research is supported by the Victorian Government's Operational Infrastructure Program.