Australians' views on personal genomic testing: focus group findings from the Genioz study
Sylvia A Metcalfe, Chriselle Hickerton, Jacqueline Savard, Bronwyn Terrill, Erin Turbitt, Clara Gaff, Kathleen Gray, Anna Middleton, Brenda Wilson, Ainsley J Newson
EUROPEAN JOURNAL OF HUMAN GENETICS | NATURE PUBLISHING GROUP | Published : 2018
Personal genomic testing provides healthy individuals with access to information about their genetic makeup for purposes including ancestry, paternity, sporting ability and health. Such tests are available commercially and globally, with accessibility expected to continue to grow, including in Australia; yet little is known of the views/expectations of Australians. Focus groups were conducted within a multi-stage, cross-disciplinary project (Genioz) to explore this. In mid-2015, 56 members of the public participated in seven focus groups, allocated into three age groups: 18-24, 25-49, and ≥50 years. Three researchers coded transcripts independently and generated themes. Awareness of personal..View full abstract
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Awarded by Australian Research Council Discovery Project Grant
Awarded by Wellcome
The authors acknowledge Elaine Stackpoole and Rigan Tytherleigh for their assistance with focus groups. Funding was provided through an Australian Research Council Discovery Project Grant (DP150100597) and was supported by the Victorian Government's Operational Infrastructure Support Program, the Garvan Institute of Medical Research and the University of Sydney Network on Bodies, Organs, and Tissues. This work was also supported by Wellcome grant 206194 paid to Society and Ethics Research, Connecting Science. Ainsley Newson is supported by a Sydney Medical School Research Accelerator Grant (2017-2018).