Journal article
A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation
CE Holbein, ND Fogleman, K Hommel, S Apers, J Rassart, P Moons, K Luyckx, MA Sluman, J Enomoto, B Johansson, HL Yang, M Dellborg, R Subramanyan, JL Jackson, W Budts, AH Kovacs, S Morrison, M Tomlin, K Gosney, A Soufi Show all
Congenital Heart Disease | WILEY | Published : 2018
DOI: 10.1111/chd.12583
Abstract
Objective: First, to compare QOL and illness perceptions between patients with a Fontan circulation and patients with anatomically simple defects (ie, atrial septal defects [ASD] or ventricular septal defects [VSD]). Second, to explore illness perceptions as a mediator of the association between congenital heart disease (CHD) diagnosis and QOL. Design: Cross-sectional observational study. Setting: Twenty-four cardiology centers from 15 countries across five continents. Patients: Four hundred thirty-five adult patients with congenital heart disease (177 Fontan and 258 ASD/VSD) ages 18-83 years. Outcome Measures: QOL and illness perceptions were assessed by the Satisfaction With Life Scale and..
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Awarded by National Institutes of Health
Funding Acknowledgements
Research Fund - KU Leuven, Grant Award/Number: OT/11/033; the Swedish Heart-Lung Foundation, Grant Award/Number: 20130607; the University of Gothenburg Centre for Person-centered Care, Cardiac Children's Foundation Taiwan, Grant Award/Number: CCF2013_02; the National Institutes of Health, Grant Award/Number: T32HD068223