Disclosure of adverse events: a data linkage study reporting patient experiences among Australian adults aged >= 45 years
Merrilyn Walton, Reema Harrison, Jennifer Smith-Merry, Patrick Kelly, Elizabeth Manias, Christine Jorm, Rick Iedema
Australian Health Review | CSIRO PUBLISHING | Published : 2019
Objective Since Australia initiated national open disclosure standards in 2002, open disclosure policies have been adopted in all Australian states and territories. Yet, research evidence regarding their adoption is limited. The aim of the present study was to determine the frequency with which patients who report an adverse event had information disclosed to them about the incident, including whether they participated in a formal open disclosure process, their experiences of the process and the extent to which these align with the current New South Wales (NSW) policy. Methods A cross-sectional survey about patient experiences of disclosure associated with an adverse event was administered ..View full abstract
Awarded by National Health and Medical Research Council of Australia (NHMRC)
The present study was funded by a National Health and Medical Research Council of Australia (NHMRC) Project Grant (ID: 1049703). This research was completed using data collected through the 45 and Up Study (see www.saxinstitute.org.au, accessed 26 February 2018). The 45 and Up Study is managed by the Sax Institute in collaboration with major partner Cancer Council NSW and other partners: the National Heart Foundation of Australia (NSW Division); NSW Ministry of Health; NSW Government Family & Community Services - Ageing, Carers and the Disability Council NSW; and the Australian Red Cross Blood Service. The authors thank the many thousands of people participating in the 45 and Up Study.