The value of clinical colorectal cancer registries in colorectal cancer research a systematic review

Abstract

IMPORTANCE Clinical colorectal cancer registries (CCCRs) are potentially powerful tools in colorectal cancer research. They are resource intensive, but to our knowledge, no formal review of their value exists. While quality control, clinical audit, and benchmarking are important factors in assessing the value of maintaining CCCRs, they are difficult to quantify. This study focuses on registry research output as a measure of value; the study hypothesizes that CCCRs do not produce sufficient published research output of clinical significance to justify the resources required to maintain them. OBJECTIVE To assess the value of maintaining CCCRs by identifying and characterizing existing CCCRs an..