Equitable Participation in Biobanks: The Risks and Benefits of a “Dynamic Consent” Approach
Megan Prictor, Harriet Teare, Jane Kaye
Frontiers in Public Health | Frontiers Media | Published : 2018
Participation in biobanks tends to favor certain groups—white, middle-class, more highly-educated—often to the exclusion of others, such as indigenous people, the socially-disadvantaged and the culturally and linguistically diverse. Barriers to participation, which include age, location, cultural sensitivities around human tissue, and issues of literacy and language, can influence the diversity of samples found in biobanks. This has implications for the generalizability of research findings from biobanks being able to be translated into the clinic. Dynamic Consent, which is a digital decision-support tool, could improve participants' recruitment to, and engagement with, biobanks over time an..View full abstract
Awarded by Wellcome Trust
MP and HT Melbourne Law School and University of Melbourne STEM funding. JK Wellcome Trust 096599/2/11/2.