Facing the Challenges of Primary Progressive Aphasia: The Spousal Perspective
Margaret Pozzebon, Jacinta Douglas, David Ames
JOURNAL OF SPEECH LANGUAGE AND HEARING RESEARCH | AMER SPEECH-LANGUAGE-HEARING ASSOC | Published : 2018
Purpose: Primary progressive aphasia (PPA) is a cognitive-neurodegenerative disorder. Little is known about the personal impact PPA has on those living with this condition, particularly from a spousal perspective. The aim of this qualitative study was to gain an understanding of the personal experiences of spouses living with a partner diagnosed with variant forms of PPA. Method: Thirteen spouses whose partners were diagnosed with PPA participated in 1:1 semistructured, in-depth interviews to explore their lived experiences of this illness. Using a constructivist grounded theory approach, analysis moved through a process of data-driven open and focused coding for the identification of emerge..View full abstract
This work was supported by La Trobe University and the Royal Melbourne Hospital Speech Pathology Department, as well as the Mary Elizabeth Watson Fellowship. We thank the participants who made the research possible by generously sharing their stories and time.