Journal article
The long-term quality of life outcomes in adolescents with Hirschsprung disease
S Sood, R Lim, L Collins, M Trajanovska, JM Hutson, WJ Teague, SK King
Journal of Pediatric Surgery | W B SAUNDERS CO-ELSEVIER INC | Published : 2018
Abstract
Background: Postoperative outcomes for Hirschsprung disease (HD) remain variable, with many patients affected by constipation and/or fecal incontinence. The long-term impact upon quality of life (QoL) for HD patients is unclear. We measured long-term QoL outcomes in adolescents with HD using validated questionnaires. Methods: Patients with HD, managed at a large tertiary pediatric institution between 1997 and 2004, were identified. Patients and/or their proxy completed validated questionnaires. Results were compared with published healthy population controls. Two questionnaires assessed QoL: Pediatric Quality of Life Inventory (PedsQL) and Fecal Incontinence and Constipation Quality of Life ..
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Funding Acknowledgements
Associate Professor Sebastian King is the grateful recipient of a Career Development Award (Murdoch Children's Research Institute) and the Senior Lecturer Fellowship (Royal Australasian College of Surgeons). His position as an Academic Pediatric Surgeon is possible owing to a generous grant from The Royal Children's Hospital Foundation.Associate Professor Warwick Teague's position as an Academic Pediatric Surgeon and Director of Trauma Services is generously supported by The Royal Children's Hospital Foundation.