Journal article

Sharing data for future research-engaging participants' views about data governance beyond the original project: a DIRECT Study

Nisha Shah, Victoria Coathup, Harriet Teare, Ian Forgie, Giuseppe Nicola Giordano, Tue Haldor Hansen, Lenka Groeneveld, Michelle Hudson, Ewan Pearson, Hartmut Ruetten, Jane Kaye

Genetics in Medicine | NATURE PUBLISHING GROUP | Published : 2019

University of Melbourne Researchers


Awarded by Innovative Medicines Initiative Joint Undertaking

Funding Acknowledgements

The authors would like to thank all of the teams in the consortium that assisted with the survey development, distribution, and collection. The work leading to this publication has received support from the Innovative Medicines Initiative Joint Undertaking under grant agreement no. 115317 (DIRECT), resources of which are composed of financial contribution from the European Union's Seventh Framework Programme (FP7/2007-2013) and EFPIA companies' in-kind contribution.