Journal article
Research priorities for childhood chronic conditions: A workshop report
P Lopez-Vargas, A Tong, S Crowe, SI Alexander, PHY Caldwell, DE Campbell, J Couper, A Davidson, S De, DA Fitzgerald, S Haddad, S Hill, M Howell, A Jaffe, LJ James, A Ju, KE Manera, A McKenzie, AM Morrow, HL Odgers Show all
Archives of Disease in Childhood | BMJ PUBLISHING GROUP | Published : 2019
Abstract
Chronic conditions are the leading cause of mortality, morbidity and disability in children. However, children and caregivers are rarely involved in identifying research priorities, which may limit the value of research in supporting patient-centred practice and policy. Objective To identify priorities of patients, caregivers and health professionals for research in childhood chronic conditions and describe the reason for their choices. Setting An Australian paediatric hospital and health consumer organisations. Methods Recruited participants (n=73) included patients aged 8 to 14 years with a chronic condition (n=3), parents/caregivers of children aged 0 to 18 years with a chronic condition ..
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Awarded by Australasian Society of Clinical Immunology and Allergy
Funding Acknowledgements
This project is supported by a NSW Ministry of Health, Office for Health and Medical Research (OHMR) project grant. AT is supported by the National Health and Medical Research Council (NHMRC) Fellowship (1106716). MW is supported by NHMRC Senior Research Fellowship and Cure Kids New Zealand. Research at the Murdoch Children's Research Institute is supported by the Victorian Government's Operational Infrastructure Programme. AvZ is funded by an NHMRC postgraduate scholarship (APP1115259).