Development of the International Severe Asthma Registry (ISAR): A Modified Delphi Study.
Lakmini Bulathsinhala, Nevaashni Eleangovan, Liam G Heaney, Andrew Menzies-Gow, Peter G Gibson, Matthew Peters, Mark Hew, Job FM van Boven, Lauri Lehtimäki, Eric van Ganse, Manon Belhassen, Erin S Harvey, Luis Perez de Llano, Anke H Maitland-van der Zee, Nikolaos G Papadopoulos, J Mark FitzGerald, Celeste Porsbjerg, G Walter Canonica, Vibeke Backer, Chin Kook Rhee Show all
J Allergy Clin Immunol Pract | Published : 2019
BACKGROUND: The lack of centralized data on severe asthma has resulted in a scarcity of information about the disease and its management. The development of a common data collection tool for the International Severe Asthma Registry (ISAR) will enable standardized data collection, subsequently enabling data interoperability. OBJECTIVES: To create a standardized list of variables for the first international registry for severe asthma via expert consensus. METHODS: A modified Delphi process was used to reach consensus on a minimum set of variables to capture in ISAR: the core variables. The Delphi panel brought together 27 international experts in the field of severe asthma research. The proces..View full abstract