Journal article

Psychometric properties of the Quality of Life Inventory-Disability (QI-Disability) measure

Jenny Downs, Peter Jacoby, Helen Leonard, Amy Epstein, Nada Murphy, Elise Davis, Dinah Reddihough, Andrew Whitehouse, Katrina Williams



PURPOSE: Children with intellectual disability encounter daily challenges beyond those captured in current quality of life measures. This study evaluated a new parent-report measure for children with intellectual disability, the Quality of Life Inventory-Disability (QI-Disability). METHODS: QI-Disability was administered to 253 primary caregivers of children (aged 5-18 years) with intellectual disability across four diagnostic groups: Rett syndrome, Down syndrome, cerebral palsy or autism spectrum disorder. Exploratory and confirmatory factor analyses were conducted and goodness of fit of the factor structure assessed. Associations between QI-Disability scores, and diagnostic and age groups ..

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Awarded by National Institute of Health

Awarded by National Health and Medical Research Council

Funding Acknowledgements

We thank the families for their participation in this study. We acknowledge the database infrastructures necessary for the current study. The authors thank the Disability Services Commission WA in establishing the Down syndrome database, and community organisations Developmental Disability WA and the Down Syndrome Association of Western Australia for their support. We thank the Australian Paediatric Surveillance Unit (APSU) and the Rett Syndrome Association of Australia for their ongoing support in case ascertainment for the Australian Rett Syndrome Database. The Australian Rett Syndrome Study was previously supported by the National Institute of Health Grant 5R01HD043100-05 and National Health and Medical Research Council project Grants #303189 and #1004384. The Victorian Cerebral Palsy Register receives funding from the Victorian Department of Health and Human Services and from the Victorian Government's Operational Infrastructure Support Program for support for register staff. We acknowledge the support of Dr Sue Reid in the recruitment of families with a child with cerebral palsy and Dr Emma Glasson who supported the recruitment of families from the WA Autism Registry. This study is currently funded by the National Health and Medical Research Council (#1103745). ED was previously supported by a Victorian Health Promotion Public Health Fellowship. AW and HL are each supported by a Senior Research Fellowship from the National Health and Medical Research Council (#1077966 and #1117105, respectively). KW in funded by the Apex Foundation for Research into Intellectual Disability and the Royal Children's Hospital Foundation. DR is funded by a University of Melbourne Award. The funders of this research have had no roles in the study design, data collection, data analysis, manuscript preparation and/or publication decisions.