Journal article

The PROCLIPI international registry of early-stage mycosis fungoides identifies substantial diagnostic delay in most patients

JJ Scarisbrick, P Quaglino, HM Prince, E Papadavid, E Hodak, M Bagot, O Servitje, E Berti, P Ortiz-Romero, R Stadler, A Patsatsi, R Knobler, E Guenova, F Child, S Whittaker, V Nikolaou, C Tomasini, I Amitay, H Prag Naveh, C Ram-Wolff Show all

British Journal of Dermatology | Wiley | Published : 2019

Abstract

BACKGROUND: Survival in mycosis fungoides (MF) is varied and may be poor. The PROCLIPI (PROspective Cutaneous Lymphoma International Prognostic Index) study is a web-based data collection system for early-stage MF with legal data-sharing agreements permitting international collaboration in a rare cancer with complex pathology. Clinicopathological data must be 100% complete and in-built intelligence in the database system ensures accurate staging. OBJECTIVES: To develop a prognostic index for MF. METHODS: Predefined datasets for clinical, haematological, radiological, immunohistochemical, genotypic, treatment and quality of life are collected at first diagnosis of MF and annually to test agai..

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