Journal article

Investigating Nutrition-Related Complications and Quality of Life in Patients With Gastroenteropancreatic Neuroendocrine Tumors: Protocol for a Mixed-Methods Prospective Study

Erin Laing, Nicole Kiss, Michael Michael, Karla Gough, Meinir Krishnasamy

JMIR RESEARCH PROTOCOLS | JMIR PUBLICATIONS, INC | Published : 2018

Abstract

BACKGROUND: Gastroenteropancreatic neuroendocrine tumors (GEP NETs) are a heterogeneous group of tumors with distinct effects on the body due to their potential to secrete hormones and peptides. The incidence and prevalence of GEP NETs in Australia are rising. During 2000-2006, the annual incidence was approximately 3.3 per 100,000 population. To date, there has been development of clinical practice and consensus guidelines for NETs covering best practice for diagnosis, treatment, and medical management; however, the supportive care needs and optimal nutritional management of patients affected by NETs remains underresearched, and evidence to guide clinical practice is lacking. While there is..

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Grants

Funding Acknowledgements

The authors wish to thank KG and Ms Alison Drosdowsky from the Department of Cancer Experiences Research at Peter MacCallum Cancer Centre for their advice and assistance in drafting the statistical analysis section of the protocol. This study is jointly funded by Victorian Cancer Agency, Australia; Austin Health, Australia; Ipsen Australia; and Unicorn Foundation, Australia.