Journal article
Health outcomes and lifestyle in a sample of people with multiple sclerosis (HOLISM): Longitudinal and validation cohorts
TJ Weiland, AM De Livera, CR Brown, GA Jelinek, Z Aitken, SL Simpson, SL Neate, KL Taylor, E O’kearney, W Bevens, CH Marck
Frontiers in Neurology | FRONTIERS MEDIA SA | Published : 2019
Abstract
Objective: To report the methodology and summary data of the Health Outcomes and Lifestyle In a Sample of people with Multiple sclerosis (HOLISM) longitudinal and validation cohorts. We report (1) data on participation, socio-demographics, disease characteristics, medication use, modifiable lifestyle risk factor exposures, and health outcomes of the HOLISM longitudinal cohort 2.5-years post enrolment; (2) attrition at this 2.5-year wave; and (3) baseline characteristics of the associated HOLISM validation cohort. Methods: The HOLISM longitudinal study recruited people internationally with self-reported diagnosed multiple sclerosis (MS) through web 2.0 platforms and MS society newsletters. Pa..
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Awarded by Bloom's Syndrome Foundation
Funding Acknowledgements
This research was funded by the Bloom Foundation, Wal Pisciotta, and donors. CM is funded by a National Health and Medical Research Council Early Career Fellowship (ECF 1120014).