Journal article

Exploring the emotional and behavioural reactions to receiving personalized melanoma genomic risk information: a qualitative study

GL Fenton, AK Smit, L Keogh, AE Cust

BRITISH JOURNAL OF DERMATOLOGY | WILEY | Published : 2019

Abstract

BACKGROUND: There is a need for greater understanding of the spectrum of emotional and behavioural reactions that individuals in the general population may experience in response to genomic testing for melanoma risk. OBJECTIVES: To explore how individuals in the general population respond to receiving personalized genomic risk of melanoma. METHODS: Semistructured interviews were undertaken with 30 participants (aged 24-69 years, 50% female, 12 low risk, eight average risk, 10 high risk) recruited from a pilot trial in which they received personalized melanoma genomic risk information. We explored participants' emotional and behavioural responses to receiving their melanoma genomic risk infor..

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Grants

Awarded by National Health and Medical Research Council (NHMRC)


Awarded by Career Development Fellowships from the NHMRC


Awarded by Cancer Institute NSW


Funding Acknowledgements

This study received funding from the National Health and Medical Research Council (NHMRC, no. 1129822), Sydney Catalyst Translational Cancer Research Centre and The University of Sydney Cancer Strategic Priority Area for Research Collaboration (SPARC) Implementation Scheme. A.E.C. received Career Development Fellowships from the NHMRC (1147843) and Cancer Institute NSW (15/CDF/1-14). A.K.S. received a Research Training Program (RTP) Stipend Scholarship and a Merit Top Up Scholarship from the University of Sydney, and Top Up Scholar Awards from the Sydney Catalyst Translational Cancer Research Centre and the Melanoma Institute Australia.