Conference Proceedings

Patient Perspectives on Self-Management Technologies for Chronic Fatigue Syndrome

Tabby Davies, Simon L Jones, R Kelly

Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems - CHI '19 | Association for Computing Machinery (ACM) | Published : 2019

Abstract

Chronic Fatigue Syndrome (CFS) is a debilitating medical con­dition that is characterized by a range of physical, cognitive and social impairments. This paper investigates CFS patients’ perspectives on the potential for technological support for self-management of their symptoms. We report findings from three studies in which people living with CFS 1) prioritized symptoms that they would like technologies to address, 2) ar­ticulated their current approaches to self-management along­ side challenges they face, and 3) reflected on their experiences with three commercial smartphone apps related to symptom management. We contribute an understanding of the specific needs of the ME/CFS population ..

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