Australians' views and experience of personal genomic testing: survey findings from the Genioz study
Jacqueline Savard, Chriselle Hickerton, Rigan Tytherleigh, Bronwyn Terrill, Erin Turbitt, Ainsley J Newson, Brenda Wilson, Kathleen Gray, Clara Gaff, Anna Middleton, Elaine Stackpoole, Sylvia A Metcalfe
EUROPEAN JOURNAL OF HUMAN GENETICS | NATURE PUBLISHING GROUP | Published : 2019
Personal genomic tests (PGTs) for multiple purposes are marketed to ostensibly healthy people in Australia. These tests are generally marketed and purchased online commercially or can be ordered through a health professional. There has been minimal engagement with Australians about their interest in and experience with ordering a PGT. As part of a multistage, interdisciplinary project, an online survey (Stage 2 of the Genioz study) was available from May 2016 to May 2017. In total, 3253 respondents attempted the survey, with 2395 completed Australian responses from people with and without experience of having a PGT: 72% were female; 59% of the whole sample were undertaking/or had a universit..View full abstract
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Awarded by Australian Research Council Discovery Project
Awarded by Wellcome
Funding was provided through an Australian Research Council Discovery Project grant (DP150100597) and was also supported financially by the Victorian Government Operational Infrastructure support program, The Garvan Institute of Medical Research and the University of Sydney Network on Bodies, Organs and Tissues. This work was also supported by Wellcome Grant 206194 paid to Society and Ethics Research, Connecting Science. Ainsley Newson is supported by a Sydney Medical School Research Accelerator Grant (2017-2018).