Motivations for data sharing-views of research participants from four European countries: A DIRECT study
Nisha Shah, Victoria Coathup, Harriet Teare, Ian Forgie, Giuseppe Nicola Giordano, Tue Haldor Hansen, Lenka Groeneveld, Michelle Hudson, Ewan Pearson, Hartmut Ruetten, Jane Kaye
European Journal of Human Genetics | NATURE PUBLISHING GROUP | Published : 2019
Awarded by Innovative Medicines Initiative Joint Undertaking from the European Union's Seventh Framework Programme (FP7/2007-2013)
The authors would like to thank all of the teams in the consortium that assisted with the survey development, distribution, and collection, as well as the participants of the DIRECT project who participated in this study for their time. The work leading to this publication has received support from the Innovative Medicines Initiative Joint Undertaking under grant agreement no. 115317 (DIRECT), resources of which are composed of financial contribution from the European Union's Seventh Framework Programme (FP7/2007-2013) and EFPIA companies' in-kind contribution.